Parenting with lupus is a distinctive journey, filled with challenges and triumphs that shape not only my life but also my child’s life. As a parent with lupus, I’ve come to understand the importance of balance, self-care, and open communication within our family.
Rest is Paramount
Navigating parenthood with lupus requires recognizing the significance of rest and stress management. Lupus can be unpredictable, and fatigue is a constant companion. I’ve learned that the more rested and less stressed I am, the more quality time I can devote to my child. This realization has led me to maintain a sensible schedule, making sure to prioritize moments of relaxation and self-care.
Delegate & Reassign
To lighten the load, I’ve also embraced the idea of reassigning household chores. Delegating tasks to family members or seeking help from friends allows me to conserve energy for the moments that truly matter. It’s not about doing it all; it’s about creating a supportive environment where everyone plays a role in maintaining the family dynamics.
Support Network is Key
Building a network of friends and outside family members who can step in when needed has been a game-changer. Knowing that there’s a support system in place provides a sense of security for my child, my husband and me. Whether it’s someone to pick up my child from school or assist with household responsibilities, having a reliable network helps minimize disruptions in our daily lives.
Be Prepared for Hard Questions
One aspect that I’ve found challenging is addressing my child’s concerns about my health. Children are perceptive, and they pick up on mood changes. While my child may not always express feelings directly, it’s essential to create a space for open communication. My child has had questions about whether lupus is life-threatening, and addressing these concerns with honesty and reassurance has been crucial.
Be As Open As You Can Be
Sharing information about lupus and its impact on our family dynamics has been a key element of our journey. Educating my child about the changes in my health and the adjustments in responsibilities helps them understand the situation better. It fosters a sense of unity and teamwork as we navigate the challenges together. Of course, I also work hard to ensure that the level of information I’m sharing is age appropriate, as well, but that definitely varies from kid to kid.
Parenthood with lupus is undoubtedly a balancing act, requiring adaptability and resilience. By making conscious choices to prioritize self-care, seeking support, and fostering open communication, I aim to create a nurturing environment for my child while managing the complexities of living with lupus. It’s a journey filled with love, understanding, and the strength to overcome whatever challenges may come our way.
